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Inclusive Education of Children with Rare Diseases. The Credible Project

Oscar R. Lozano1, Eirini Tzovla2
1 University of Valencia (Spain)
2 4th Primary School of Pefki (Greece)

Abstract. Inclusive education is one of the pillars on which educational policies are based, both in the European Union and in global organizations such as UNESCO. As a result of these guidelines set by these institutions, much progress has been made in general, especially in certain types of disability, gender issues or migration issues, but many sectors of the population still feel “excluded” from the educational system, such as the case of children with rare diseases. Based on these premises, ten organizations from five different countries join forces under the umbrella of the Erasmus+ program in its key action K201, materializing these efforts in the CREDIBLE project (Children with rare diseases and their inclusion in basic learning environments). The objectives of the project coincide with those mentioned but, in addition, focusing on teacher training. Providing teachers with tools to carry out an effective educational inclusion of children with rare diseases is essential to achieve successful educational practices and raise awareness among the population. This project offers the creation of three intellectual outputs oriented to this purpose. The first of them is a platform for exchanging cases in which, teachers who have faced this challenge can share their experiences with other teachers who are beginning this path. The second is a self-training course for teachers (MOOC type) in which methodologies and tools are offered for this goal. The third is a pedagogical-health guide of the most prevalent rare diseases and grouped in such a way that the guide can be useful for other diseases with similar pathologies. The project, which began in 2019, and with the difficulties caused by the COVID 19 pandemic, will culminate in August 2022, with a final act in Glasgow in which the final results will be presented.

Keywords: Inclusive education, rare diseases, Erasmus+, teacher training

In: Human, Technologies and Quality of Education, 2022. Proceedings of Scientific Papers = Cilvēks, tehnoloģijas un izglītības kvalitāte, 2022. Rakstu krājums
Riga, University of Latvia, 2022. 1135 p. Ed. L. Daniela
ISBN 978-9934-18-911-1